Friday, July 14, 2017

Day 21 - Optifast.

OK. I'm now at week three.
Well, not until tomorrow morning. But this is a full 21 days on liquid diet.

Is it working? You betcha. Can I tell? You betcha. Can others? Nawh, there are no comments from anyone at work.

2 weeks weight loss: 13lbs (their scale)
3 weeks weight loss: 7.5lbs (my scale)

Yes, that total is 20.5lbs

And this week I'm STARVING!! What the hell!??? I don't do bad in the morning, but at night? Horrible!! Today I had 7am, 11am, 3pm, 5pm, 7pm, 9pm and starving at 9:30. Sigh. Not giving in JUST yet. Not truly emergency mode just yet... adding a Fresca. Maybe that will help then just go to BED!!

Anyway. Here is the results.

Ok I can NOT see the difference from the front. No way, no how...just don't see it unless it's my BOOBS shrinking. I mean come on! Not the boobs!! Honestly bras are fitting a little different, so sadly they may be shrinking 🙁 boooo - hahaha - kidding. Who cares.

The NEXT is where I have to admit the difference.

Yeah there is a difference. I am NOT sucking in. Nope. Not at all. Just standing there all relaxed

May have to go to the gym to exercise the arms there. While I still can (for a while)

So there you have it.

Oh and I read my lab results on my tumors. It was a little scary with thoughts of a DNA something or other. There is a bit more to have them look at as far as the heredity factor of what's going on in there.

I went back and looked at the initial paperwork.
3 polyps removed
1 polyp ablated
1 cancer tumor identified
Next colonoscopy
1 polyp removed
1 biggie identified
Next colonoscopy
Identified biggie removed
1 MORE polyp removed

Yeah. The total is 8. EIGHT. One of the 8 is really a tumor. 1 precancerous. Yeah, something is going on in there pathology report says:

Interpretation: The results of the IHC analysis suggest the presence of normal DNA mismatch repair function within the tumor. Thus, the likelihood that this individual has an inherited colon cancer syndrome due to defective DNA mismatch repair (HNPCC/Lynch syndrome) is reduced but not eliminated.

These results reduce but do not completely rule out the possibility of defective DNA mismatch repair within the tumor because approximately 5% of cases with defective mismatch repair do not show absence of protein expression by IHC. These results also do not exclude the possibility that this individual's tumor is due to an inherited defect in another gene not involved in DNA mismatch repair. A significant fraction of clinically defined HNPCC cases (30% or more) do not have defective DNA mismatch repair as the underlying genetic basis of their disease.

Additionally, we cannot rule out the possibility that this individual or family has HNPCC/Lynch syndrome because this tumor could represent a sporadic occurrence. If there is a strong personal or family history of HNPCC/Lynch syndrome-related cancers for this individual or if this individual has multiple tumors, consider microsatellite instability (MSI) testing on this tumor or a different tumor to further evaluate the possible role of defective DNA mismatch repair for this individual or family.

CAUTIONS: Test results should be interpreted in context of clinical findings, family history, and other laboratory data. A genetic consultation may be of benefit.

So... how's THAT for messed up? Sigh. So. We I assume they are doing the MIS testing they indicated and we will seek out the genetic consultation and see what this means for MY girls!! I guess we won't borrow trouble until we hear more, bug we will investigate for sure!!

Tuesday, July 11, 2017

Third times the charm.

We chose to drive to Jacksonville this morning. Crack of dawn...I drove down...Butch drove back 😜

First up, blood work (typical) then ECG. All went fine 😀
What wasn't fine was fasting, clear diet, clear liquid diet day prior AND nothing to drink from 11am forward. Ugh!

Lunch for Butch...and I got nada, no water, nada. Insert pity party 😭

Pretty bird in the pond while walking to get stuff from the car.
Back to the clinic..and checked into gastro. New area to visit. It was in the Mayo building. A new one for me to some extent. MRI was there too on the 2nd floor. Gastro is on the 5th floor and very much a hospital setting. There is a central nurses station with about ten curtained "rooms" around it.

This is room 6. Aka my room.

Toe view and nurses station. I got to keep my phone for the duration. 😀. Well, until they wheeled me back. Then it went into a bag with my glasses and was hung from my IV pole 😀

All hooked up and ready to GO!

Last text to Butch 2:03pm. First text after I woke up 3:54. Apparently I woke up quickly as they seemed shocked to come by and see me in my glasses with my phone. Ha! They were on the table close enough to reach. 😜

I did complaint about the new drug. Last time they gave me fentenol the last time. This time it was propofol. It's a much easier more coherent wake up. But no drugged sleep. I stayed awake an hour or so then passed out for majority of the way home 😴
Not too shabby

Reports are already out on the portal with pictures.

Where are all these freaking polyps coming from?

I had NO idea about the one in the cecum area. Sigh. Oh, well. They are all OUT!
Next up the big bad guy and resection.
Good news is this keeps me it's more colon.
So hopefully this will mean a normal bowel function later...I'll take it!

Oh, and I signed up for a study on these types of polyps and the treatment approaches for standard of care. So, I get a 6 month follow up on this area to see jos the treatment worked for keeping reoccurrence down. I'm already in a study fir blood tests for colon cancer and now this one. Call me guinea pig 🐹. Hey, if it keeps others from this stuff. I'm good!

Monday, July 10, 2017

Surgery date is set

Surgery will be on the 18th of August.
Pre-Op stuff on the 17th.

And I'm totally fine with that date. Would be sooner, but, meh.

Son of a.....*****beeeeeeepppppppppppp*******

FINAL DIAGNOSIS (from the pathology during last colonoscopy)
A) Colon, ascending, biopsy: Benign colonic mucosa with prominent lymphoid aggregate. 😀 good news!!

Translation: Examples of benign polyps include hyperplastic polyps (also called metaplastic polyps), lipomas (benign tumor of fat cells), neuromas (benign tumors of nerve cells), inflammatory polyps (localized inflammation) or lymphoid aggregates (a cluster of immune cells).

B) Colon, splenic flexure, biopsy: Sessile serrated polyp/adenoma. 😡😡😡😡 WTF body? Why you gotta do me this way?

Translation: Sessile serrated adenoma and traditional serrated adenomas, however, are premalignant lesions and can progress to adenocarcinoma; adenocarcinoma developing at sites of preexisting serrated polyps has been reported. Sessile serrated adenomas are the principle serrated precursor for colorectal cancer.

So...what we're REALLY doing tomorrow is removing a precancerous lesion/flat polyp. News to me. Pray for clear margins on the removal and then we're done with that part or it's a longer snippy snip. Guess it could ave been worse and been cancer already...then again..what's more cancer when you already HAVE cancer? Sigh.

C) Colon, rectosigmoid, biopsy: Adenocarcinoma. 😳 already known news - this is the big bad guy.

D) Colon, rectum, biopsy: Hyperplastic polyp. 😀 good news!!

"What's ten pounds off a whale?"

Ok Ok before y'all get mad I really do not think I'm a whale. Big gal, yes. Whale? No. BUT I had to steal the saying off my Aunt Tuny. It's perfect. 10 pounds sounds like. Lot but not when you need t lose considerably more.

So when they put me on my forced diet thought I would take before and during pictures. So the first 10lbs are off. 2 BMI points.

I should apologize for the Jammie's, but I won't. It is what it is.
Before - day 1

And after - day 14
I even wore the same Jammie's so there is a true comparison. To me, there is no difference.

Ok maybe the side view is a little slimmer, but not much.

And the diet continues.
I have to say I look happier in day 1 - hahaha. Hangry woman!