Well, I haven't updated since Saturday when I was still feeling rather "OK" - that went downhill fast.
Sunday I barely moved from bed to chair to bed... looking at food on TV even made me queasy. Yeah, I was a mess. Monday I woke up and thought "hum...., I could eat"... yeah, hadn't had that thought in a day.
So I ate some cheese grits and then even went out to lunch with Mom, Aunt Tuny and Lynn. It was a nice lunch at Appleby's in Perry



then I went home and took a nap - ha! I'm such a light weight! I tell you, that chemo is not for the weak at all!
So I have had hot flashes, nausea to the point of waking me up in the middle of the night, diarrhea, even when not eating (makes for gross bag emptying lemme tell ya), exhaustion, blurry vision (not bad, more like sleepy eyes), gas (still burping all the time), cold sensitivity (could NOT drink cold drinks for about four days after disconnect), and rough spots in the mouth (a few are sores now, but working around them) and sore back (which according to them is very weird).. and with ALL this? I was told today I'm tolerating chemo well. HA!
Yep, my blood counts are all looking OK for where I am in the process. The symptoms I have are all workable. They aren't horrible. They are not GREAT, by any means, but really? It could be worse, I could be puking my guts up, I could have active sores in my mouth that keep me from eating at all.... BUT the back pain? Holy mother! Yeah, I could live without that crap. I was looking at the pain scale today and for me? I think it's a 5 - meaning it's a sad face. Yeah, they would rate that at an 7 to 9. Sigh... I'm way too tough for my own good at points like these...
So - I'm now going to be taking prescription strength Advil and Tylenol alternating ... then filling (or trying to) the prescription for my heavy duty stuff (OxyCodone) to have on hand if things just get too much. If it's not better by Friday I'm to call them. But really? What are they going to do about it all? Gimme drugs. I will have drugs on hand and will take those and hope for the best.
Sigh. This stuff sucks.
Sunday I felt like I had been hit by a truck and had the flu. I was looking at the clock at 8:30pm and going to sleep and sleeping until 8am - yep... you read that right AND taking a nap to boot. It's sooo sad. Last night even I was looking at the clock and thinking "what is acceptable for me to just ditch out and go to bed?" it was 8:30pm. Lawd!!
So... I feel more "together" during the day now and yesterday... but honestly could sleep for hours. The good news is that over the weekend I would sleep and NOT feel rested... now I sleep and nap and actually FEEL rested when I wake up. That's always a plus!
So - there you have it, what it's like to be on chemo for the first time...
Sleep, feel horrible, sleep, feel horrible, start to come out of the yuckies slowly... sleep some more.... sleep some more... and hopefully by the time I start this all over again I will be used to the drill and just know to sleep when I need to sleep and do what I gotta do.
Work is understanding to some degree in that I telework. I get up at 7am - literally roll out of bed and sign into the computer - jammies and all. I get coffee at some point. HOWEVER that is another thing... coffee and I are not on speaking terms right now... could NOT stomach it over the weekend. I did tea and toast all weekend. And Ritz crackers. They were welcomed. And room temperature water. Really - straight out of the garage so barely room temperature - more like luke warm. But, hey, it worked for me. Hydration is a thing... something I have a harder time keeping up on - so far no liquids have been needed, so I think I'm riding a fine line. Not quite at dehydrated, but feeling a bit dehydrated.
So, that is the update for now. Not all roses and pretty things, but not all doom and gloom either.
Trying not to sugar coat it and say I'm fine... but when I think about what could be, when I see the folks in the cancer center in wheel chairs and I'm up and walking and driving myself to treatments, I feel very lucky to be where I am, and as healthy as I am through this. It's not a walk in the park, but it's not super horrible.
What I'm honestly dreading more than anything is the reversal and incontinence. I'm not sure I'm ready for that. I mean I know I'll do what I need to, but I dread it.