The visit goes like this… “the lung nodules you have are staying consistent, no changes. The one near your rectum is the same as well” (this one got a “that’s a new one to me, but good that it’s the same size”). Then NOTHING. I reacted in shock with “ok the two I’m concerned about are the two peritoneal ones”. The discussion continues with the history from January to now. Then come my comments and questions of are they winging this or comparing to prior? Are they (the nodes) just gone? Are we all good?
Doc did mention well you are at five years. Well yeah, but after all these scares what do we do? Do we just say “ok, you’re at 5 years, last scan was grand you’re done see ya?”
What he DID mention was Signatera came back as negative. I thought it was over ruled by insurance. Guess not as I haven’t gotten a bill for it!
He asked me what I felt about it all. This is always met with “I’m not a doctor!” So I proposed PET scan to determine if that same area still had high uptake or if that was a fluke or infection. He agreed. So there we are: six months, repeat PET to see what is there/not there..
Would YOU press for 2nd opinion? Would you just ride this out because PET scans are notorious for being something other than cancer? How on earth do you move on from this at 5 years and not still think every twinge is cancer??
Guess we shall find out.
